Cari

CPN's In the Zoom Room: What Siblings Wa...

The Feeding Tube is a difficult decision...

The continuing relationship with her pro...

You can't ever be fully ready. (Sanfilip...

How much longer is this going to take? I...

“We always knew we wanted her to die a...

It’s one thing to NOT know you’re a ...

More Children? It was important to talk ...

How we thought about a feeding tube or n...

No one wants to feel like they’re ‘g...

Once we understood what it was, we got o...

Her sharp decline was hardest on her bro...

Sanfilippo /MPS: The dreaded question. ...

We were lucky to always be on the same p...

Sanfilippo/MPS: We hoped she would live ...

The church provided emotional support fo...

Our primary care pediatrician was our bi...

Your day-to-day life can be a happy plac...

Talking to a Third Party, “Am I crazy?...

Our first child's fatal diagnosis, with ...

Sanfilippo: The road to diagnosis