IN THE ROOM: Considering Tracheostomy, With or Without Home Ventilation

is the director of the Treuman Katz Center for Pediatric Bioethics and a pulmonologist at Seattle Children’s Hospital. He is professor and chief of the Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine. He conducts empirical research and conceptual scholarship focused on ethical and policy issues at the research/clinical care interface. His current focus relates to the integration of genomic testing into clinical practice, informed consent about research on medical practices, and decision-making about technological interventions in children with disabilities. He is the research ethics case co-editor of the American Journal of Bioethics and on the editorial boards of the Hastings Center Report, Ethics and Human Research, and Journal of Genetic Counseling.

is an Associate Professor of Pediatrics in the Division of Critical Care Medicine and Core Faculty in the Center for Bioethics and Medical Humanities at the University of Mississippi Medical Center. Her research efforts focus on the care of chronically critically ill children in the Pediatric ICU, as well as how to navigate complex decision-making with parents for their critically ill child.

is the Rembrandt Foundation Professor of Pediatric Palliative Care, Associate Professor of Neonatology, and Core Faculty at the Johns Hopkins Berman Bioethics Institute. Dr. Boss cares for seriously ill children and supports families who face challenging medical decisions. Her research targets parent-clinician communication. She leads the multicenter Pediatric Chronic Critical Illness Collaborative, is on the Executive Committee of the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine, and is Co-Director of the Hecht-Levi Fellowship at the Berman Institute of Bioethics.