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Families and clinicians reflect on the lived experience of caring for children with a serious medical condition.

Good Lung Down

Good Lung Down

In respiratory care, the good lung goes down so the struggling one can expand. Caregivers of ill children often flip that—hiding grief; showing others the strong side.
Pediatric Palliative Care: A Father’s Perspective

Pediatric Palliative Care: A Father’s Perspective

First published on ehospice. When my daughter was diagnosed with a rare and life-limiting condition, my world changed in an instant. I was thrown into an unfa...

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